No one with cystic fibrosis left behind

No one with Cystic Fibrosis Left Behind

Sign the Petition

360
Goal: 500

Join Cystic Fibrosis Canada in taking action by signing this petition and calling on public drug programs to fund the life-changing drug Trikafta for all Canadians who could benefit. Together, we can ensure no one with cystic fibrosis is left behind.

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Dear Canadian Health Ministers, 

Canada’s Drug Agency (CDA) has recommended Canada’s public drug programs fund Trikafta – a life-changing therapy for cystic fibrosis - for Canadians with at least one of 152 rare cystic fibrosis mutations, following Health Canada’s approval earlier this summer.

Sadly, this recommendation leaves about 180 Canadians with ultra-rare mutations who might benefit from Trikafta behind. These individuals face layers of inequities such as being left out of clinical trials due to insufficient numbers, and now governments deny their chance to try this potentially life-changing therapy.  

The CDA recommendation is non-binding, which means our public drug programs do not need to follow it.  Other countries like France and the UK already provide broad access to Trikafta. Here in Canada, Alberta has stepped up and agreed to fund Trikafta for anyone who could benefit from the drug. It’s time for all public drug plans to follow Alberta’s lead. 

We call on all public drug plans to fund Trikafta for anyone who may benefit from it immediately. Cystic fibrosis can’t wait.   

This campaign is hosted by Cystic Fibrosis Canada. We will protect your privacy, and keep you informed about this campaign and others.

Cette campagne est menée par Fibrose kystique Canada. Nous protégerons votre vie privée et vous tiendrons au courant de cette campagne et d'autres campagnes.